Ever heard of Duchenne Muscular Dystrophy?
Bet you haven't. But you should have. And you might think that spending an evening talking about a disease would be a grim one (especially a disease that kills about 1 in every 3,000 boys born around the world, and one which has no cure YET).
But it wasn't grim at all.
Actually, it was a lot of fun. I was a guest on 'PressPlay', the excellent radio show on JCom radio hosted by the superb Jeremy Jacobs. I was talking about all kinds of stuff - my books, music, how far you live from your mum (yes, YOU) - but my fellow guest was Doron Rosenfeld, from the GM Trust.
Check out the Trust's site. It's nothing to do with General Motors, or Genetically Modified crops (though there is a tenuous 'genetic research' link with Jimmy Coates, in a strange way...).
It's worth having a look at: www.thegmtrust.org
Right, I'd better get back to re-writing Jimmy Coates: Survival...
2 comments:
Thanks for this Joe.
It's a worthy cause. I know well an elderly lady whose three brothers all had Duchennes (and consequently died young). She married and had five children herself, three of whom were also boys with Duchennes and died tragically young. She has told me of the 'miracle' she appreciates daily that there is now a test for it which means that now she knows that her granddaughters are free of the gene and it has "gone out of the family".
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